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Table 2 Summary of domains of inequities identified by participants

From: Priorities and expectations of researchers, funders, patients and the public regarding equity in medical research and funding: results from the PERSPECT qualitative study

Domain

Inequity Identified

Opportunities Identified

Research Participation/ Engagement

• Less representation of minority background or non-English-speaking subjects

• Clinical investigations bias white subjects

• Involve more non-English speaking participants in research

• Recruit representative minority groups in research studies

Research Funding

• Elite institutions secure most of the funding

• Senior established researchers have an advantage and receive more funding

• Money drives topic selection

• Researchers with high output are valued more

• Emerging treatments harder to get funding for than traditional interventions

• Unequal access to funding from emerging areas of enquiry

• Western-centric funding

• Funding supports better marketed diseases i.e. cancer

• Consider blinding research proposal reviewers to institution and researcher names so proposals are judged on their own merit/quality

• Raise awareness of emerging biases

• Use an equity lens to help inform funding allocations

• Build research capacity by allotting funding for teaching, graduate student work and mentorship initiatives

Research Topic Prioritization

• Skewed topic selection to people who run trials

• Most ‘trendy topics’ selected

• Topics are selected with impassioned campaigns or personal experience of funders

• Topics do not reflect all populations or population health priorities

• Study focuses on illness and not health disparities

• Topics that do not fit within a single discipline are often underexplored

• Explore patient priorities

• Promote research of health issues that impact females and gender minorities

• Promote more interdisciplinary collaboration

International Collaborations

• Unequal distribution of resources posing a barrier to inclusion of LMICs in international collaborations

• Under-investigation of diseases that primarily impact LMICs

• Incentivize international collaboration between research groups

• Share ideas and methodologies between different world regions

• Invest in generation of research data on diseases that impact specific LMIC populations

• Build research capacity by connecting expert researchers from HICs to other parts of the world, reach out and provide support for budding leaders and research structures