Table 1 Participant demographics

Demographic Characteristics

Rural (n = 14) n (%)

Metropolitan (n = 23) n (%)

 Participant Type

  Person undergone diagnosis as patient

6 (42.9)

5 (21.7)

  Adult Child

6 (42.9)

11 (47.8)

  Partner/Spouse

1 (7.1)

6 (26.1)

  Other – Sibling, Friend

1 (7.1)

1 (4.3)

 Sex

  Male

2 (14.3)

7 (30.4)

  Female

12 (85.7)

16 (69.6)

Diagnosis Characteristics

Rural (n = 12)

Metropolitan (n = 21)

  Diagnosis

  Alzheimer’s

4 (33.3)

9 (42.8)

  Frontotemporal Dementia

2 (16.7)

4 (19.0)

  Lewy Body Dementia

0 (0.0)

1 (4.8)

  Vascular Dementia

2 (16.7)

1 (4.8)

  Mixed Dementia (Alzheimer’s and Vascular)

1 (8.3)

2 (9.5)

  Dementia (subtype not reported)

1 (8.3)

2 (9.5)

  Mild Cognitive Impairment

1 (8.3)

1 (4.8)

  No Dementia/Mild Cognitive Dementia Diagnosis

1 (8.3)

1 (4.8)

 Age at Diagnosis

  ≤ 65 years

5 (41.7)

4 (19.0)

  66 – 75 years

3 (25.0)

4 (19.0)

  76 – 85 years

1 (8.3)

3 (14.3)

  > 85 years

0 (0.0)

3 (14.3)

  Not reported

2 (16.7)

6 (28.6)

  No Dementia/Mild Cognitive Dementia Diagnosis

1 (8.3)

1 (4.8)

 Years Since Diagnosis

  Diagnosis 0–5 years

6 (50.0)

8 (38.1)

  Diagnosis 6–10 years

2 (16.7)

7 (33.3)

  Diagnosis 10 + years

3 (25.0)

3 (14.3)

  No diagnosis

1 (8.3)

1 (4.8)

  Not reported

0 (0.0)

2 (9.5)

 State/Territory of Diagnosis

  Victoria

6 (50.0)

8 (38.1)

  Queensland

2 (16.7)

6 (28.6)

  Western Australia

1 (8.3)

2 (9.5)

  New South Wales

1 (8.3)

2 (9.5)

  South Australia

1 (8.3)

2 (9.5)

  Tasmania

1 (8.3)

0 (0.0)

  Australian Capital Territory

0 (0.0)

1 (4.8)

 Modified Monash Model^a

  MM1

-

21 (100.0)

  MM2

5 (41.7)

-

  MM3

3 (25.0)

-

  MM4

3 (25.0)

-

  MM5

1 (8.3)

-

 Australian Statistical Geography Standard Remoteness Areas^b

  Major Cities of Australia

-

21 (100.0)

  Inner Regional Australia

7 (58.3)

-

  Outer Regional Australia

5 (41.7)

-